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CRRS Caregiver Roles and Responsibilities Scale For caregivers of cancer patients LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview The caregiver roles and responsibilities scale (CRRS) was developed to facilitate formal assessment of broad life impacts for informal (i.e. unpaid) caregivers to people with cancer. MEASURE NAME: Caregiver Roles and Responsibilities Scale (CRRS) VERSION: 1 NUMBER OF ITEMS: 43 to 51 PATIENT POPULATION: Caregivers of cancer patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Support and Impact, Lifestyle, Emotional Health and Well-being, Self-care, Financial Well-being, Jobs and Career TIME FOR COMPLETION: 15-20 minutes SCORING: Manual scoring template RELATED MEASURES: PRRS , FACT-G Caregiver , FACT-G7 DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the CRRS can be obtained when licensing the measure. Users are not permitted to translate the CRRS without prior permission from FACIT.org. Permission may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor of the CRRS. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Shilling V, Starkings R, Jenkins V, Cella D, Fallowfield L. Development and validation of the caregiver roles and responsibilities scale in cancer caregivers. Qual Life Res . 2019 Jun;28(6):1655-1668. doi: 10.1007/s11136-019-02154-4. Epub 2019 Mar 18. PMID: 30887387; PMCID: PMC6522459. Shilling V, Matthews L, Jenkins V, Fallowfield L. Patient-reported outcome measures for cancer caregivers: a systematic review. Qual Life Res . 2016 Aug;25(8):1859-76. doi: 10.1007/s11136-016-1239-0. Epub 2016 Feb 12. PMID: 26872911; PMCID: PMC4945691. LICENSE THIS MEASURE Related Measures Related Measures PRRS Patient Roles and Responsibilities Scale LEARN MORE FACT-G Caregiver Functional Assessment of Cancer Therapy – General – Caregiver Version LEARN MORE FACT-G7 Functional Assessment of Cancer Therapy - General - 7 Item Version LEARN MORE

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BACK PROMIS SF v1.0-Dyspnea-Severity 10a Scoring Downloads http://www.healthmeasures.net/score-and-interpret/calculate-scores/scoring-instructions

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OMDQ Oral Mucositis Daily Questionniare A daily measure for patients with oral mucositis LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Originally developed by Amgen in conjunction with clinical studies in support of palifermin, the OMDQ is a reliable, valid, and responsive patient-reported measure of oral mucositis severity. While multiple variants of the OMDQ/OMWQ have been published, the version licensed by FACIT.org is the official, final version developed by Amgen. MEASURE NAME: Oral Mucositis Daily Questionniare (OMDQ) VERSION: 2 NUMBER OF ITEMS: 5 PATIENT POPULATION: Oral mucositis patients 18 years and older RECALL PERIOD: Past 24 hours RESPONSE SCALE: Various DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Not available TIME FOR COMPLETION: Not available SCORING: Manual scoring template RELATED MEASURES: OMWQ , FACT-HN , NFHNSI-22 DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the OMDQ can be obtained when licensing the measure. Users are not permitted to translate the OMDQ without prior permission from FACIT.org. Permission may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor of the OMDQ. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Stiff PJ, Erder H, Bensinger WI, Emmanouilides C, Gentile T, Isitt J, Lu ZJ, Spielberger R. Reliability and validity of a patient self-administered daily questionnaire to assess impact of oral mucositis (OM) on pain and daily functioning in patients undergoing autologous hematopoietic stem cell transplantation (HSCT). Bone Marrow Transplant. 2006 Feb;37(4):393-401. doi: 10.1038/sj.bmt.1705250. PMID: 16415901. LICENSE THIS MEASURE Related Measures Related Measures OMWQ Oral Mucositis Weekly Questionnaire LEARN MORE FACT-HN Functional Assessment of Cancer Therapy – Head and Neck LEARN MORE NFHNSI-22 National Comprehensive Cancer Network/Functional Assessment of Cancer Therapy Head & Neck Cancer Symptom Index - 22 Item Version LEARN MORE

BACK PROMIS SF v1.0-Dyspnea-Severity 5b Scoring Downloads http://www.healthmeasures.net/score-and-interpret/ calculate-scores/scoring-instructions