Below are selected publications and presentations by our staff, detailing the various approaches and challenges to attaining cross-cultural measurement equivalence.
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Translatability Assessment of the Fluid Overload from Nephrotic Syndrome Measure
Pérez, B., Carlozzi, N., Arnold, B., Parks-Vernizzi, E., Herzberg, T., Peipert, J.D., Creguer, T., Hurt, C., Lai, J., Raghunathan, T., Ganatra, S., Hashemi, S., Scherr, B., Zhai, Y., Salmon, E.
Quality of Life Research (2024) 33:S1–S235
Presented at ISOQOL Cologne, October 2024.
Translation and linguistic validation of 24 PROMIS item banks into French
Ahmed S, Parks-Vernizzi E, Perez B, Arnold B, Boucher A, Hossenbaccus M, Correia H, Bartlett SJ.
Qual Life Res. 2024 Aug;33(8):2119-2127. doi: 10.1007/s11136-024-03690-4. Epub 2024 Jun 12. PMID: 38865068; PMCID: PMC11286690.
Dealing with the Complexities of Concurrently Translating and Implementing Electronic Clinical Outcome Assessments: Best Practices Roundtable: The Two-Step Dance of Concurrent Translation and Implementation of eCOAs
Shalhoub, H., Turner, M., Bradley-Gilbride, A., Eremenco, S., Muhlan-Rehmer, H., Parks-Vernizzi, E., Arnold, B., Kulis, D., Anfray, C., Chaplin, J.
Quality of Life Research (2024) 33:S1–S235
Presented at ISOQOL Cologne, October 2024.
Translation and Linguistic Validation of the EXACT for Use with COPD Patients in African Countries
Savic L., Arnold B., Baily A., Mackey DJ., Olaiya P.
Presented at ISOQOL Calgary, October 2023.
Winner of the 2023 Outstanding Poster Award
Psychometric properties of the Polish version of the FACIT-Sp-12: Assessing spiritual well-being among patients with chronic diseases
Machul M., Bredle J., Jurek K., Dobrowolska B.
Achieving Conceptual and Cultural Equivalence in Universal Arabic PROMIS Item Banks
Parks-Vernizzi E., Nagy E., Guillen R., Boucher A., Arnold B., Maksud E., Correia H., Bakhsh HR, Bin Sheeha BH, Al-Dhahi M., Al-Hasani R.
Presented at ISOQOL Calgary, October 2023.
Translation & Linguistic Validation of the FACIT-COST Measuring Financial Toxicity in Cancer Patients Worldwide
Savic L., Parks-Vernizzi E., Arnold B., Bredle JM
Presented at ISOQOL Calgary, October 2023.
Translation & Linguistic Validation of PROMIS SF v2.0 -Physical Function -MS 15a & PROMIS SF v1.0 -Fatigue -MS 8a for use in India & Malaysia
Parks-Vernizzi E., Pérez B., Maksud E., Son J., Arnold B., Correia C.
Presented at PHO Prague, October 2022.
The Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System: Guidance for Use in Research and Clinical Practice
Webster, K.A., Peipert, J.D., Lent, L.F., Bredle, J., Cella, D.
Kassianos, A.P. (eds) Handbook of Quality of Life in Cancer. Springer, Cham. https://doi.org/10.1007/978-3-030-84702-9_6
Pediatric and parent proxy Peds-FACT-Br translations and cross-cultural validation: challenges and resolutions
Arnold B., Bredle J., Parks-Vernizzi E., Savic L.
Presented at ISOQOL Prague, October 2022.