Overview
Below are the details for the FAMS measure:
MEASURE NAME:
Functional Assessment of Multiple Sclerosis (FAMS)
VERSION:
4
NUMBER OF ITEMS:
58
PATIENT POPULATION:
Multiple sclerosis patients 18 years and older
RECALL PERIOD:
Past 7 days
RESPONSE SCALE:
5 point Likert-type scale
DATA COLLECTION:
Paper and electronic
ADMINISTRATION:
Self-administration and interview when applicable
SUBSCALE DOMAINS:
Mobility, Symptoms, Emotional Well-Being, General Contentment, Thinking and Fatigue, Family/Social Well-Being, Additional Concerns
TIME FOR COMPLETION:
15-20 minutes
SCORING:
Manual scoring template, some items are reverse scored. Subscale scores and total scores possible. SAS/SPSS algorithms available.
RELATED MEASURES:
FAHI, FACIT-Dyspnea, FACIT-TB
Language Availability
Available translations of the FAMS can be obtained by registering for permission. Users are not permitted to translate the FAMS without permission from FACIT.org. Permission from FACIT.org to translate the FAMS may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system.
Please contact us for more information.
Licensing
Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained.
Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use.
To license an available version of this measure for commercial or non-commercial use, please complete our registration form. All of the information provided in the form will be kept strictly confidential. For questions, please contact us.
Selected References
Cella, D.F., Dineen, K., Arnason, B., Reder, A., Webster, K.A., Karabatsos, G., Chang, C., Lloyd, S., Mo, F., Stewart, J., & Stefoski, D. Validation of the Functional Assessment of Multiple Sclerosis Quality of life instrument. Neurology 1996; 47: 129-139. doi: 10.1212/WNL.47.1.129.
Fischer, J., LaRocca, N., Miller, D., Ritvo, P., Andrews, H. & Paty, D. Recent developments in the assessment of quality of life in Multiple Sclerosis (MS). Multiple Sclerosis 1999; 5(4): 251-259. doi: 10.1177/135245859900500410.
Kossakowska, M. Standaryzacja polskiej wersji Kwestionariusza do Oceny Jakości Życia w Stwardnieniu Rozsianym (FAMS). Psychologia Jakości Życia, 2004; 3(1): 61-80.
Riazi, A., Hobart, J., Lamping, D., Fitzpatrick, R., & Thompson, A. Evidence-based measurement in multiple sclerosis: the psychometric properties of the physical and psychological dimensions of three quality of life rating scales. Multiple Sclerosis 2003; 9; 411-419. doi: 10.1191/1352458503ms929oa.
Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320.
Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232.
Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85.
Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191.
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